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30 Rare Disease Groups Win Horizon’s #RAREis Global Advocate Grants


A total of 30 patient advocacy groups working to further understanding and the needs of people living with rare diseases have been selected to receive a Horizon Therapeutics‘ #RAREis Global Advocate Grant.

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Winners of this year’s inaugural awards are spread across nine countries and represent a total of 29 rare disease communities.

Among them are the LGS Foundation and the Prader-Willi Syndrome Association USA, supporting people with Lennox-Gastaut syndrome and Prader-Willi syndrome in the U.S., as well as the Raising Hope International Friends for people living with sickle cell disease in Uganda and the Foundation for Neuromuscular Support Nigeria, a muscular dystrophy organization in that country.

Selected from over 120 applications spanning 12 countries, a full listing of awarded organizations is available. Each will receive a one-time grant of $5,000, for a total of $150,000, to continue supporting the rare disease communities they serve.

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